Our Family is Your Family

Getting Started

Helping a loved one with intellectual and/or developmental disabilities (I/DD) brings up many questions. By working with your team of professionals, you will begin identifying the unique needs of the person in your life and how to meet these needs. The following steps will help you find out what is required to receive assistance.

Contact Arc of Genesee Orleans

Our Intake Specialist at the Arc of Genesee Orleans can get you started in finding answers. For assistance contact us at info@arcgo.org.

Here are some documents you will need:

  • Individualized Service Plan (most recent - within 12 months)
  • Complete physical exam (within the past 12 months; including list of medications)
  • TB test /PPD from school or health professional
  • Chicken pox immunization information from school or health professional
  • DDP-2
  • DDP-4 (For day service needs)
  • Psychological evaluation, including an IQ score and an adaptive behavior assessment
  • Psychosocial evaluation
  • Social Security, Medicaid, and private insurance cards
  • Age of onset documentation if the person is over age 22

Please bring the following documents if applicable:

  • DDSP Risk Assessment
  • Program and Plans and Individualized Protective Oversight Plan (IPOP)
  • Diagnostic Vocational Evaluation/CWBA (if applying for a vocational program)
  • Clinical evaluations
  • Legal guardian paperwork
  • Current SSI/SSD Award letter
  • Community habilitation authorization forms

Enroll in State Programs

To receive services for people with intellectual and/or developmental disabilities (I/DD) in New York state, you must enroll in Medicaid and the Home and Community Based Services Waiver (HCBS) program. This is done through the New York State Office for People with Developmental Disabilities (OPWDD). Eligibility requirements include:

  • Diagnosis of a developmental disability that must have occurred prior to age 22. This includes autism, cerebral palsy, epilepsy, traumatic brain injury, and other neurological disabilities, such as a learning disability and Tourette’s syndrome.
  • An expected continuation of the disability

Eligibility for special education services through school does not automatically qualify a child for services through OPWDD. Contact OPWDD. A representative will ask for the individual’s name and contact information, the kind of help or services you are seeking, and what agency is assisting you. You may wish to mention the Arc of Genesee Orleans.

The OPWDD representative will provide information on what to do next. These may be referred to as “Front Door Steps.”

Attend an Information Session

Front Door Information sessions help people with developmental disabilities and their family learn about services and supports. For information on Front Door sessions contact info@arcgo.org.

Make Your Plan

A Front Door facilitator will conduct an assessment of strengths, needs, and interests for your preliminary service plan. Updates to the plan are made as you meet with Arc professionals and receive authorization for services.